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Examples of support groups include those who have similar illnesses, diseases, or chronic conditions, such as cancers and addiction.
Also support groups help people with relationship problems, such as divorce and adoption, as well as those with major life changes, such as the death of a partner or child, caring for an elderly parent, divorce, or job loss.
The new fund will assist individuals with out-of-pocket medical expenses associated with their condition and treatment, including premiums, deductibles, copays, coinsurance and incidental medical expenses. Except for knowing I am working every day for people who live with MG—just like me and my family-- what I might love most about being MGFA’s CEO is being a part of the growth and camaraderie of the MG Walk.
Until this year, I and my teammates, “The Rocky Mountain Rascals” had been to every Colorado MG Walk.
MGFA Board member, Jurgen Venitz, MD, Ph D and support group leader Kathie Bibeau are advisors on the project.
We at MGFA look forward to continuing to work closely with Drs. The European Commission has approved the use of Soliris (eculizumab) for treatment of refractory generalized myasthenia gravis (g MG) in adults who are anti-acetylcholine receptor (ACh R) antibody-positive.
Support groups occur in a variety of different formats or settings, including in-person group discussions, telephone conversations, and online groups.
This grant application has been in the works for nearly a year---with MGFA providing use of the MG Patient Registry and funding a focus group to provide evidence of need.
Generally, support group members are not judgemental.